In 2005 right before I turned 27 I began to have bloody stools & diarrhea. The onset of symptoms started about the same time I separated from my ex husband. I first visited my family doctor and presented him with my symptoms at the time. He was aware of the emotional issues I was having at the time due to my separation. I remember he ran a series of blood tests and stool tests. Nothing came back except my inflammation markers were raised. The doctor gave me a prescription for prednisone and sent on my way.
About a year later in 2006 the symptoms returned. This time my doctor referred me to a GI specialist. Right off the bat I did not like the GI doctor but I continued to see him anyway. The new GI doctor put me on prednisone with a taper. They symptoms went away again. I truly hated taking prednisone. I had horrible side effects with that medication. I had bloating, anxiety, hunger, and anger issues. I am completely on edge with that medication. The only explanation I was given for my symptoms was IBS.
In 2007 my symptoms returned again. I went back to the previous GI doctor and this time he ordered a colonoscopy. After the colonoscopy I was finally diagnosed with Ulcerative Colitis. Her prescribed Entocort, and mesalamine enemas. After the I finished with the Entocort my symptoms returned and he prescribed 6MP and I kept using the mesalamine enemas.
I continued with the 6MP and mesalamine under doctor supervision until 2009. In June of 2009 I married my husband and we wanted to try to start having kids. Without doctor supervision I stopped 6mp and kept with the mesalamine. As I said before I was never comfortable with my current GI.
My symptoms started resurfacing in the fall of 2009. It was at this time my mother introduced me to the Specific Carbohydrate Diet. My Aunt has Celiac and she was using the diet to help her Celiac. In the fall I started the diet. It seemed to work rather well for me. In February I became pregnant and eventually fell off the diet. During the first 3 months of my pregnancy I had symptoms. I visited a new GI doctor and he prescribed me round of prednisone along with colocort enemas. I used colocort as needed throughout my pregnancy and I kept appointments with my new GI. For the most part my symptoms went away during my pregnancy. I felt healthier than I ever felt in my life.
Two weeks after my daughter was born I ended up in the hospital with a kidney stone and infection. I was given antibiotics for this. I took them and then all of my symptoms returned. I have memories of sitting on the toilet with such bad diarrhea that I had to try to nurse my newborn baby while sitting on the toilet. I spent much of her first 6 weeks of life in the bathroom. Once the symptoms did return my doctor put me on Entocort again along with the enemas. I was able to keep things under control with the enemas for the most part.
In 2011 May of 2011 I started the diet again. I did really well with the diet. The Specific Carbohydrate Diet kept my symptoms away until Fall of 2013. I traveled that fall and by the time my trip was over my symptoms returned 100% despite staying true to the diet. I was in so much pain I could barely move. I visited my doctor’s office and spoke with the nurse practitioner two days before Thanksgiving. She told me that if I had waited any longer I would have been in the hospital. She put me on Uceris, Lialda, and Canasa. She also ordered a Flex Sigmoidoscopy. The flex showed severe inflammation. She prescribed Cololort and I kept taking Lialda. I was still following the SCD 100%.
January 2014 – Fall of 2015 I struggled with my symptoms. During that time I had 3 Flex’s. I had another dose of Uceris. By the fall all of my meds were reduced to 2 Lialda and 1 Canasa a day. I am still continuing the SCD 100%. My symptoms are OK now. Stress does cause me flare ups though.
To help with stress and my flare ups I have introduced using Young Living essential oils. For my ulcerative colitis I use DiGize. This helps so much with my flare ups. I also use, Joy, Peac & Claming, and Stress Away to help with my anxiety.
My plan is to keep on the SCD 100%, use essential oils and my current medications. So far this has kept me from having to take Humira, which my doctor has informed is my next step. I am happy with where things stand now. In a perfect world I would be completely healed and not have to deal with the disease, but we do not live in a perfect world. I am doing the best I can with the cards that I have been given and I am OK with that.